Grantmakers › District of Columbia
The Parent Project for Muscular
Washington, DC · EIN 31-1405490. Reported 95 grants totalling $9,555,628 to 42 organizations across tax years 2021-2024, on Form 990 Schedule I.
Does this grantmaker accept applications?
Its tax return does not say, and we will not guess. Private foundations file Form 990-PF, which asks outright whether they fund only organizations they select themselves -- 78% say yes, and that one answer is what lets the rest of this site tell you which foundations are worth approaching. Grantmaking charities like this one file a regular Form 990 instead, and the IRS never puts the question to them. Anyone claiming to know the answer from the filing is inventing it.
Three things in the filing do bear on it:
- What kind of organization it is. For The Parent Project for Muscular, the IRS classifies it under human services rather than as a grantmaker (NTEE P20Z) -- it is an operating charity that also makes grants.
- How spread out its giving is. 42 distinct organizations, with 21% of the dollars going to the largest single recipient. That is genuinely spread out -- the mark of a funder making many independent decisions rather than underwriting one institution.
- How much its list changes. 65% of one year's grantees are funded again the next, across 3 year-to-year transitions. That is about the 57% median for grantmaking charities -- noticeably lower than the 67% private foundations manage. Organizations like this one rotate more of their list each year, which is where an opening for a newcomer tends to be.
How big are its grants?
The median reported grant is $50,000. Half of what it reported fell between $25,161 and $100,000; the smallest was $5,890 and the largest $641,008. If you are asking for materially more than the top of that range, you are asking the wrong organization.
Every organization it funded
This is the complete list from its filings, largest first. Recipients are grouped by the EIN the filer reported, not by name, so an organization that was typed differently in two years appears once rather than twice.
| Organization | Location | Total received | Grants | Years funded | Last |
|---|---|---|---|---|---|
| Childrens Hospital Medical Center | Cincinnati, OH | $1,976,655 | 6 | 4 | 2024 |
| University of Florida Foundation Inc | Gainesville, FL | $1,411,183 | 4 | 4 | 2024 |
| University of Florida | Gainesville, FL | $1,036,336 | 6 | 4 | 2024 |
| New York University | New York, NY | $575,000 | 5 | 4 | 2024 |
| Health Research Incorporated Elizabeth Wood | Menands, NY | $450,000 | 1 | 1 | 2021 |
| Critical Path Institute | Tucson, AZ | $399,601 | 4 | 4 | 2024 |
| Northwestern University | Evanston, IL | $377,250 | 4 | 4 | 2024 |
| Regents Univ of California | Los Angeles, CA | $355,000 | 4 | 3 | 2024 |
| Research Foundation for the State University of New York | Albany, NY | $351,450 | 3 | 3 | 2023 |
| The Ohio State University | Columbus, OH | $339,995 | 7 | 4 | 2024 |
| Team Joseph Inc | W Bloomfield, MI | $285,000 | 2 | 2 | 2023 |
| Analysis Group | Boston, MA | $235,000 | 4 | 4 | 2024 |
| Nationwide Childrens Hospital Inc | Columbus, OH | $235,000 | 5 | 4 | 2024 |
| Regents of the University of California at Berkeley | Riverside, CA | $230,750 | 4 | 4 | 2024 |
| The Nemours Foundation | Jacksonville, FL | $220,905 | 4 | 4 | 2024 |
| University of Rochester | Rochester, NY | $210,000 | 1 | 1 | 2024 |
| Arkansas Childrens Hospital Research Institute | Little Rock, AR | $72,603 | 2 | 1 | 2024 |
| Arkansas Childrens Foundation | Little Rock, AR | $69,785 | 2 | 2 | 2022 |
| Really Useful Robots | Langhorne, PA | $66,479 | 2 | 2 | 2023 |
| American College of Medical Genetics and Genomics | Bethesda, MD | $63,510 | 1 | 1 | 2021 |
| Vanderbilt University Medical Center | Nashville, TN | $55,036 | 1 | 1 | 2023 |
| University of Utah | Salt Lake City, UT | $50,326 | 2 | 2 | 2024 |
| Myogene Bio LLC | Los Angeles, CA | $50,000 | 1 | 1 | 2022 |
| Regents of the University of Colorado | Denver, CO | $50,000 | 1 | 1 | 2024 |
| Trustees of the University of Pennsylvania | Philadelphia, PA | $50,000 | 1 | 1 | 2022 |
| Emmes Endpoint Solutions LLC | Kingston, MA | $35,000 | 1 | 1 | 2023 |
| Childrens Research Institute | Washington, DC | $32,740 | 1 | 1 | 2023 |
| Curators of the University of Missouri | Kansas City, MO | $31,500 | 1 | 1 | 2021 |
| Duke University | Durham, NC | $30,163 | 1 | 1 | 2022 |
| Yale University | New Haven, CT | $25,161 | 1 | 1 | 2023 |
| Regents of University of Minnesota | Minneapolis, MN | $25,000 | 1 | 1 | 2024 |
| The University of Iowa | Iowa City, IA | $25,000 | 1 | 1 | 2024 |
| Everylife Foundation for Rare Diseases | Washington, DC | $20,000 | 1 | 1 | 2021 |
| Hugo W Moser Research Institute at Kennedy Krieger Inc | Baltimore, MD | $20,000 | 2 | 2 | 2022 |
| University of Massachusetts Chan Med School | Worcester, MA | $20,000 | 1 | 1 | 2024 |
| Institute Advance Clinical Trials for Children | Rockville, MD | $18,200 | 1 | 1 | 2021 |
| Faseb | Rockville, MD | $11,500 | 1 | 1 | 2022 |
| Energizing & Empowering Minds | Carmel, IN | $10,000 | 1 | 1 | 2022 |
| Lucile Salter Packard Childrens Hospital at Stanford | Palo Alto, CA | $10,000 | 1 | 1 | 2022 |
| Vanderbilt | Nashville, TN | $10,000 | 1 | 1 | 2024 |
| Virginia Tech Foundation Inc | Blacksburg, VA | $7,500 | 1 | 1 | 2024 |
| The Childrens Hospital of Philadelphia | Philadelphia, PA | $7,000 | 1 | 1 | 2023 |
18 of 42 (43%) received money in more than one year over the 4 years we hold. Remember the $5,000 floor: an organization funded every year at $3,000 shows up here as never funded at all.
What the money was for
Taken verbatim from the purpose column of its filings, largest first. This is the closest thing to a statement of what it funds, in its own words.
- Cincinnati Children's Hospital Mc
RESEARCH- ACTION NETWORK GRANT & CARE PROGRAM- AWARD FOR MAINTAINING PPMD CERTIFIED DUCHENNE CARE CENTER STANDARDS - Cincinnati Children's Hospital
RESEARCH - ACTION NETWORK GRANT, RESEARCH- SIBLING CASE REPORTS, CARE PROGRAM- AWARD FOR MAINTAINING PPMD CERTIFIED DUCHENNE CARE CENTER STANDARDS. - Health Research Inc
RESEARCH- NYS NEWBORN SCREENING PILOT - University of Florida Foundation
RESEARCH- BIOBANK, CARDIAC GENE THERAPY DEVELOPMENT SWEENEY, MEETING SUPPORT AND PRECLINICAL THERAPEUTIC ASSESSMENT LAB - Regents of the University of California -La
RESEARCH- DMD MOLECULAR AND CELLULAR DYNAMICS AT SINGLE NUCLEI RESOLUTION & WELLSTONE SUPPLEMENT - University of Florida
RESEARCH- WELLSTONE SUPPLEMENT AND CLINICAL STUDY OF ANTI-AAV ANTIBODY DEPLETION
What kind of organizations it funds
By each recipient's own IRS classification, for the 25 of 42 recipients we could match to a registered organization. These are assigned categories, not our guesses -- Schedule I reports the recipient's EIN, so this is a lookup rather than a name match.
Giving by year
| Tax year | Grants reported | Total | Median grant |
|---|---|---|---|
| 2021 | 22 | $2,239,078 | $49,520 |
| 2022 | 23 | $2,403,418 | $50,000 |
| 2023 | 21 | $2,462,304 | $60,000 |
| 2024 | 29 | $2,450,828 | $40,000 |
Tax years, not calendar years, and the most recent year is usually incomplete -- Form 990 arrives about a year after the year it covers, so a low final year means late paperwork rather than a grantmaker winding down.
Where its money goes
28% of its giving went to organizations in Florida. Community foundations and federated funds are usually the most geographically bounded funders there are -- being outside the footprint is normally disqualifying in a way that a weak programme fit is not.
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Funders that support the same organizations
These grantmakers and private foundations gave to organizations this one also funded. Shared grantees are the strongest signal available that two funders have overlapping priorities -- and a funder already backing your peers is a far warmer prospect than one that merely lists your cause.
How to approach this grantmaker
- Look for a published programme first. Unlike most private foundations, organizations of this kind often do run open, deadlined grant cycles with written guidelines. Its own website is the authority on that; this page is the authority on who it has actually paid.
- Check you are its size. The median reported grant is $50,000 -- and because grants under $5,000 need not be reported, it very likely writes smaller cheques than this page can see.
- Check you are in its geography. Its giving concentrates in Florida.
- Read the recipient list for organizations like yours. If nothing on it resembles your work, that is a real answer and a cheap one to get.
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Where these numbers come from
Everything above is taken from The Parent Project for Muscular's own Form 990 Schedule I filings, which the IRS publishes in bulk. We used 4 returns (tax years 2021-2024). Nothing here is scraped, inferred or estimated.
Address of record on the latest return: 1012 14TH Street Nw 500, Washington, DC, 20005.
EIN 31-1405490 · See the original filings on ProPublica · How we build this
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