The Association for Frontotemporal
King of Prussia, PA · EIN 41-2073220. Reported 33 grants totalling $7,656,562 to 23 organizations across tax years 2021-2024, on Form 990 Schedule I.
Does this grantmaker accept applications?
Its tax return does not say, and we will not guess. Private foundations file Form 990-PF, which asks outright whether they fund only organizations they select themselves -- 78% say yes, and that one answer is what lets the rest of this site tell you which foundations are worth approaching. Grantmaking charities like this one file a regular Form 990 instead, and the IRS never puts the question to them. Anyone claiming to know the answer from the filing is inventing it.
Three things in the filing do bear on it:
- What kind of organization it is. For The Association for Frontotemporal, by its IRS classification it raises and distributes funds for medical research (NTEE H124).
- How spread out its giving is. 23 distinct organizations, with 35% of the dollars going to the largest single recipient. That is genuinely spread out -- the mark of a funder making many independent decisions rather than underwriting one institution.
- How much its list changes. 30% of one year's grantees are funded again the next, across 3 year-to-year transitions. That is below the 57% median for grantmaking charities, and well below the 67% private foundations manage. A list that turns over this much is one a newcomer can realistically join.
How big are its grants?
The median reported grant is $120,000. Half of what it reported fell between $109,784 and $287,374; the smallest was $25,000 and the largest $700,000. If you are asking for materially more than the top of that range, you are asking the wrong organization.
Every organization it funded
This is the complete list from its filings, largest first. Recipients are grouped by the EIN the filer reported, not by name, so an organization that was typed differently in two years appears once rather than twice.
| Organization | Location | Total received | Grants | Years funded | Last |
|---|---|---|---|---|---|
| Alzheimers Drug Discovery Foundation | New York, NY | $2,700,000 | 4 | 4 | 2024 |
| Ftd Disorders Registry LLC | Kng of Prussa, PA | $687,374 | 3 | 3 | 2024 |
| Target Als Foundation Inc | New York, NY | $625,000 | 1 | 1 | 2021 |
| University of California San Francisco | San Francisco, CA | $460,000 | 2 | 2 | 2023 |
| American Brain Foundation | Minneapolis, MN | $450,000 | 4 | 4 | 2024 |
| Biosensics LLC | Newton, MA | $399,999 | 1 | 1 | 2023 |
| Bluefield Project to Cure Frontotemporal Dementia | San Francisco, CA | $290,000 | 1 | 1 | 2022 |
| International Society for Frontotemporal Dementias Inc | Burnsville, MN | $250,000 | 1 | 1 | 2023 |
| Washington University | St Louis, MO | $230,000 | 1 | 1 | 2024 |
| Community Foundation of North Texas | Fort Worth, TX | $200,000 | 1 | 1 | 2021 |
| Childrens Hospital Pittsburgh Foundation | Pittsburgh, PA | $120,000 | 1 | 1 | 2021 |
| Georgia State University Research Foundation Inc | Atlanta, GA | $120,000 | 1 | 1 | 2023 |
| National Institute of Neurological Disorders and Stroke | Bethesda, MD | $120,000 | 1 | 1 | 2023 |
| Regents of the University of California at San Diego | La Jolla, CA | $120,000 | 1 | 1 | 2021 |
| The Board of Trustees of the Leland Stanford Junior University | Stanford, CA | $120,000 | 1 | 1 | 2024 |
| Baylor College of Medicine | Houston, TX | $110,000 | 1 | 1 | 2022 |
| Emory University | Atlanta, GA | $110,000 | 1 | 1 | 2023 |
| University of Texas at Austin | Austin, TX | $109,994 | 1 | 1 | 2024 |
| Regents of the University of Michigan | Ann Arbor, MI | $109,784 | 1 | 1 | 2022 |
| Foundation for the National Institute of Health Inc | Rockville, MD | $109,388 | 2 | 2 | 2023 |
| The Tank Ltd | New York, NY | $95,023 | 1 | 1 | 2022 |
| Case Western Reserve University | Cleveland, OH | $60,000 | 1 | 1 | 2021 |
| Regenerative Research Foundation | Albany, NY | $60,000 | 1 | 1 | 2021 |
5 of 23 (22%) received money in more than one year over the 4 years we hold. Remember the $5,000 floor: an organization funded every year at $3,000 shows up here as never funded at all.
What the money was for
Taken verbatim from the purpose column of its filings, largest first. This is the closest thing to a statement of what it funds, in its own words.
- Alzheimer's Drug Discovery Foundation
ADDF/AFTD DRUG DISCOVERY PROGRAM AND TREAT AFTD PROGRAMS - Target Als Foundation Inc
ALS AND FTD BIOMARKERS RESEARCH - Biosensics LLC
AFTD-ALS ASSOC. FTD DIGITAL ASSESSMENT TOOLS - Bluefield Project to Cure Ftd
GENFI RESEARCH CENTER SUPPORT - International Society for Frontotemporal Dementias
INTERNATIONAL CONFERENCE SPONSORSHIP AND STRATEGIC PLANNING - Washington University in St Louis
PATHWAYS FOR HOPE PILOT GRANT
What kind of organizations it funds
By each recipient's own IRS classification, for the 20 of 23 recipients we could match to a registered organization. These are assigned categories, not our guesses -- Schedule I reports the recipient's EIN, so this is a lookup rather than a name match.
Giving by year
| Tax year | Grants reported | Total | Median grant |
|---|---|---|---|
| 2021 | 10 | $2,069,388 | $120,000 |
| 2022 | 7 | $1,514,807 | $110,000 |
| 2023 | 10 | $2,524,999 | $225,000 |
| 2024 | 6 | $1,547,368 | $175,000 |
Tax years, not calendar years, and the most recent year is usually incomplete -- Form 990 arrives about a year after the year it covers, so a low final year means late paperwork rather than a grantmaker winding down.
Where its money goes
45% of its giving went to organizations in New York. Community foundations and federated funds are usually the most geographically bounded funders there are -- being outside the footprint is normally disqualifying in a way that a weak programme fit is not.
Down to the city
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Funders that support the same organizations
These grantmakers and private foundations gave to organizations this one also funded. Shared grantees are the strongest signal available that two funders have overlapping priorities -- and a funder already backing your peers is a far warmer prospect than one that merely lists your cause.
How to approach this grantmaker
- Look for a published programme first. Unlike most private foundations, organizations of this kind often do run open, deadlined grant cycles with written guidelines. Its own website is the authority on that; this page is the authority on who it has actually paid.
- Check you are its size. The median reported grant is $120,000 -- and because grants under $5,000 need not be reported, it very likely writes smaller cheques than this page can see.
- Check you are in its geography. Its giving concentrates in New York.
- Read the recipient list for organizations like yours. If nothing on it resembles your work, that is a real answer and a cheap one to get.
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Where these numbers come from
Everything above is taken from The Association for Frontotemporal's own Form 990 Schedule I filings, which the IRS publishes in bulk. We used 4 returns (tax years 2021-2024). Nothing here is scraped, inferred or estimated.
On its most recent return it told the IRS it made grants to 6 section 501(c)(3) organizations and 0 other organizations. That is the filer's own count for one year; the totals above cover every year we hold.
Address of record on the latest return: 2700 Horizon Drive 120, King of Prussia, PA, 19406.
EIN 41-2073220 · See the original filings on ProPublica · How we build this
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