Hydrocephalus Association
North Bethesda, MD · EIN 94-3000301. Reported 43 grants totalling $2,973,491 to 25 organizations across tax years 2021-2025, on Form 990 Schedule I.
Does this grantmaker accept applications?
Its tax return does not say, and we will not guess. Private foundations file Form 990-PF, which asks outright whether they fund only organizations they select themselves -- 78% say yes, and that one answer is what lets the rest of this site tell you which foundations are worth approaching. Grantmaking charities like this one file a regular Form 990 instead, and the IRS never puts the question to them. Anyone claiming to know the answer from the filing is inventing it.
Three things in the filing do bear on it:
- What kind of organization it is. For Hydrocephalus Association, the IRS classifies it under diseases & disorders rather than as a grantmaker (NTEE G48Z) -- it is an operating charity that also makes grants.
- How spread out its giving is. 25 distinct organizations, with 24% of the dollars going to the largest single recipient. That is genuinely spread out -- the mark of a funder making many independent decisions rather than underwriting one institution.
- How much its list changes. 54% of one year's grantees are funded again the next, across 4 year-to-year transitions. That is about the 56% median for grantmaking charities -- lower than the 67% median for private foundations. It describes the organizations it already funds, not whether it would consider a new one.
How big are its grants?
The median reported grant is $50,000. Half of what it reported fell between $50,000 and $85,000; the smallest was $25,000 and the largest $173,222. If you are asking for materially more than the top of that range, you are asking the wrong organization.
Every organization it funded
This is the complete list from its filings, largest first. Recipients are grouped by the EIN the filer reported, not by name, so an organization that was typed differently in two years appears once rather than twice.
| Organization | Location | Total received | Grants | Years funded | Last |
|---|---|---|---|---|---|
| University of Utah | Salt Lake City, UT | $709,888 | 5 | 5 | 2025 |
| Primary Children's Foundation | Salt Lake City, UT | $375,000 | 5 | 5 | 2025 |
| Cleveland Clinic Foundation | Independence, OH | $229,483 | 5 | 5 | 2025 |
| University of California San Francisco Foundation | San Francisco, CA | $210,000 | 3 | 3 | 2025 |
| Washington University | St Louis, MO | $198,816 | 3 | 3 | 2023 |
| Boston Children's Hospital | Boston, MA | $100,000 | 2 | 2 | 2023 |
| Wayne State University | Detroit, MI | $100,000 | 1 | 1 | 2022 |
| Yale University | New Haven, CT | $100,000 | 2 | 2 | 2025 |
| Boston Childrens Network Specialty Physicians Inc | Boston, MA | $85,000 | 1 | 1 | 2024 |
| John Hopkins University | Baltimore, MD | $85,000 | 1 | 1 | 2024 |
| Umass Chan Medical School Foundation Inc | Worcester, MA | $85,000 | 1 | 1 | 2024 |
| Baylor College of Medicine | Houston, TX | $50,000 | 1 | 1 | 2023 |
| Childrens Hospital Los Angeles | Los Angeles, CA | $50,000 | 1 | 1 | 2024 |
| Childrens Hospital Medical Center | Cincinnati, OH | $50,000 | 1 | 1 | 2025 |
| Indiana University | Bloomington, IN | $50,000 | 1 | 1 | 2021 |
| Nationwide Childrens Hospital | Columbus, OH | $50,000 | 1 | 1 | 2025 |
| Seattle Childrens Hospital | Seattle, WA | $50,000 | 1 | 1 | 2023 |
| Stanford University | Stanford, CA | $50,000 | 1 | 1 | 2022 |
| The Foundation of the University of North Carolina at Charlotte Inc | Charlotte, NC | $50,000 | 1 | 1 | 2025 |
| University of Arizona | Tuscon, AZ | $50,000 | 1 | 1 | 2021 |
| Virginia Commonwealth University Foundation | Richmond, VA | $50,000 | 1 | 1 | 2024 |
| Western Michigan University Homer Stryker M D School of Medicine | Kalamazoo, MI | $50,000 | 1 | 1 | 2023 |
| Ut Southwestern Medical Center | Dallas, TX | $49,791 | 1 | 1 | 2025 |
| University of Colorado Foundation | Denver, CO | $49,400 | 1 | 1 | 2024 |
| South Carolina Award | Na, SC | $46,113 | 1 | 1 | 2022 |
7 of 25 (28%) received money in more than one year over the 5 years we hold. Remember the $5,000 floor: an organization funded every year at $3,000 shows up here as never funded at all.
What the money was for
Taken verbatim from the purpose column of its filings, largest first. This is the closest thing to a statement of what it funds, in its own words.
- University of Utah
TO FUND THE CLINICAL RESEARCH SITE FOR THE ADULT HYDROCEPHALUS CLINICAL RESEARCH NETWORK - Primary Children's Foundation
TO FUND THE CLINICAL RESEARCH SITE FOR THE HYDROCEPHALUS CLINICAL RESEARCH NETWORK - Washington University
MECHANISMS OF HYDROCEPHALUS RESEARCH GRANT - TO FUND BASIC RESEARCH ON HYDROCEPHALUS - Wayne State University
MECHANISMS OF HYDROCEPAHLUS RESEARCH GRANT - TO FUND BASIC RESEARCH FOR THE TREATMENT OF HYDROCEPHALUS - University of Arizona
MECHANISMS OF HYDROCEPHALUS RESEARCH GRANT - TO FUND BASIC RESEARCH TO HELP THE PREVENTION OF HYDROCEPHALUS
What kind of organizations it funds
By the activity category the IRS assigns each recipient, for the 13 of 25 recipients we could match to a registered organization. The categories are the IRS's, not ours -- Schedule I reports the recipient's EIN, so this is a lookup rather than a name match.
Giving by year
| Tax year | Grants reported | Total | Median grant |
|---|---|---|---|
| 2021 | 6 | $395,684 | $50,000 |
| 2022 | 8 | $637,798 | $75,000 |
| 2023 | 9 | $510,641 | $50,000 |
| 2024 | 11 | $823,833 | $75,000 |
| 2025 | 9 | $605,535 | $50,000 |
Tax years, not calendar years, and the most recent year is usually incomplete -- Form 990 arrives about a year after the year it covers, so a low final year means late paperwork rather than a grantmaker winding down.
Where its money goes
36% of its giving went to organizations in Utah. Community foundations and federated funds are usually the most geographically bounded funders there are -- being outside the footprint is normally disqualifying in a way that a weak programme fit is not.
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Funders that support the same organizations
These grantmakers and private foundations gave to organizations this one also funded. Shared grantees are a sign of overlapping priorities and nothing more: they do not show that any of these funders would consider a new organization. Each page says what its filings show.
How to approach this grantmaker
- Look for a published programme first. Unlike most private foundations, organizations of this kind often do run open, deadlined grant cycles with written guidelines. Its own website is the authority on that; this page is the authority on who it has actually paid.
- Check you are its size. The median reported grant is $50,000 -- and because grants under $5,000 need not be reported, it very likely writes smaller cheques than this page can see.
- Check you are in its geography. Its giving concentrates in Utah.
- Read the recipient list for organizations like yours. If nothing on it resembles your work, that is a real answer and a cheap one to get.
Related guides
Where these numbers come from
Everything above is taken from Hydrocephalus Association's own Form 990 Schedule I filings, which the IRS publishes in bulk. We used 5 returns (tax years 2021-2025). Grant figures are from its returns. Recipient classifications, the concentration and retention figures and the funders that support the same organizations are our own calculations from them, described in how we build this.
Address of record on the latest return: 6903 Rockledge Drive Suite 740, North Bethesda, MD, 20817.
EIN 94-3000301 · See the original filings on ProPublica · How we build this
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