Grantmakers › District of Columbia
Hemophilia Federation of America
Washington, DC · EIN 72-1282316. Reported 67 grants totalling $767,290 to 37 organizations across tax years 2022-2024, on Form 990 Schedule I.
Does this grantmaker accept applications?
Its tax return does not say, and we will not guess. Private foundations file Form 990-PF, which asks outright whether they fund only organizations they select themselves -- 78% say yes, and that one answer is what lets the rest of this site tell you which foundations are worth approaching. Grantmaking charities like this one file a regular Form 990 instead, and the IRS never puts the question to them. Anyone claiming to know the answer from the filing is inventing it.
Three things in the filing do bear on it:
- What kind of organization it is. For Hemophilia Federation of America, the IRS classifies it under health care rather than as a grantmaker (NTEE E70) -- it is an operating charity that also makes grants.
- How spread out its giving is. 37 distinct organizations, with 5% of the dollars going to the largest single recipient. That is genuinely spread out -- the mark of a funder making many independent decisions rather than underwriting one institution.
- How much its list changes. 45% of one year's grantees are funded again the next, across 2 year-to-year transitions. That is below the 57% median for grantmaking charities, and well below the 67% private foundations manage. A list that turns over this much is one a newcomer can realistically join.
How big are its grants?
The median reported grant is $12,000. Half of what it reported fell between $9,000 and $13,000; the smallest was $6,000 and the largest $20,000. If you are asking for materially more than the top of that range, you are asking the wrong organization.
Every organization it funded
This is the complete list from its filings, largest first. Recipients are grouped by the EIN the filer reported, not by name, so an organization that was typed differently in two years appears once rather than twice.
| Organization | Location | Total received | Grants | Years funded | Last |
|---|---|---|---|---|---|
| Tennessee Hemophilia & Bleeding Disorders Foundation | Murfreesboro, TN | $36,000 | 3 | 3 | 2024 |
| New England Hemophilia Association Inc | Dedham, MA | $34,000 | 2 | 2 | 2023 |
| Hemophilia Foundation of Southern California | Pasadena, CA | $33,000 | 3 | 3 | 2024 |
| Hemophilia Foundation of Maryland Inc | Baltimore, MD | $31,000 | 2 | 2 | 2023 |
| Hemophilia of North Carolina | Cary, NC | $29,000 | 3 | 3 | 2024 |
| The Western Pennsylvania Chapter of the National Hemophilia Foundation | Beaver, PA | $29,000 | 2 | 2 | 2023 |
| Virginia Bleeding Disorders Foundation | Richmond, VA | $29,000 | 2 | 2 | 2023 |
| United Hemophilia Foundation | Mitchellville, MD | $27,500 | 2 | 2 | 2023 |
| Hemophilia Foundation of Michigan | Ypsilanti, MI | $27,000 | 2 | 2 | 2023 |
| Pacific Northwest Bleeding Disorders | Corvallis, OR | $27,000 | 2 | 2 | 2023 |
| Rocky Mountain Hemophilia and Bleeding Disorders Association | Bozeman, MT | $26,500 | 2 | 2 | 2023 |
| Eastern Pennsylvania Bleeding Disorders Foundation | West Chester, PA | $25,000 | 2 | 2 | 2023 |
| National Hemophilia Foundation | Sacramento, CA | $25,000 | 2 | 2 | 2023 |
| Bleeding Disorders Association of South Carolina | Greenville, SC | $24,500 | 2 | 2 | 2023 |
| Louisiana Hemophilia Foundation | Baton Rouge, LA | $24,000 | 2 | 2 | 2023 |
| Asociacion Puertorriquena De Hemofilia Inc | San Juan, PR | $23,000 | 2 | 2 | 2023 |
| Florida Hemophilia Association Inc | Fort Lauderdale, FL | $22,000 | 2 | 2 | 2023 |
| Greater Ohio Bleeding Disorders Foundation Inc | Cleveland, OH | $22,000 | 2 | 2 | 2023 |
| Bleeding Disorders Southern Tier | Binghamton, NY | $21,000 | 2 | 2 | 2023 |
| Hemophilia Association of New Jersey | East Brunswick, NJ | $20,000 | 2 | 2 | 2023 |
| New York City Hemophilia Chapter | New York, NY | $20,000 | 2 | 2 | 2023 |
| National Hemophilia Foundation | Owasso, OK | $19,000 | 2 | 2 | 2023 |
| Hemophilia Foundation of Northern California | Morgan Hill, CA | $18,790 | 2 | 2 | 2023 |
| Hemophilia Association of New York Inc | New York, NY | $18,000 | 2 | 2 | 2023 |
| Utah Chapter National Hemophilia Foundation | Millcreek, UT | $18,000 | 2 | 2 | 2023 |
| Hemophilia Association of the Capital Area | Springfield, VA | $16,000 | 2 | 2 | 2023 |
| Midwest Hemophilia Association | Ozark, MO | $16,000 | 1 | 1 | 2022 |
| Bleeding Disorders Alliance of North Dakota | Fargo, ND | $14,000 | 2 | 1 | 2022 |
| Hemophilia of Iowa Inc | Durant, IA | $14,000 | 1 | 1 | 2022 |
| Bleeding Disorders Alliance Illinoi S | Chicago, IL | $13,000 | 1 | 1 | 2023 |
| Bleeding Disorders Association of Northeastern Ny Inc | Troy, NY | $13,000 | 1 | 1 | 2023 |
| Gateway Hemophilia Association | Saint Louis, MO | $10,000 | 1 | 1 | 2022 |
| Great Lakes Hemophilia Foundation Inc | Elm Grove, WI | $10,000 | 1 | 1 | 2023 |
| Hemophilia Alliance of Maine | Brewer, ME | $10,000 | 1 | 1 | 2022 |
| Lone Star Chapter of the National Hemophilia Foundation | Houston, TX | $8,000 | 1 | 1 | 2023 |
| Texas Central Hemophilia Assoc Inc | Dallas, TX | $8,000 | 1 | 1 | 2023 |
| Blood Bond Bleeding Disorders and Rare Diseases Nerwork | Matteson, IL | $6,000 | 1 | 1 | 2022 |
26 of 37 (70%) received money in more than one year over the 3 years we hold. Remember the $5,000 floor: an organization funded every year at $3,000 shows up here as never funded at all.
What the money was for
Taken verbatim from the purpose column of its filings, largest first. This is the closest thing to a statement of what it funds, in its own words.
- New England Hemophilia Association
BLEADERS RETREAT, HISPANIC HERITAGE SYMPOSIUM & VIRTUAL EVENTS IN SPANISH, VON WILLEBRAND DISEASE RETREAT, WOMEN'S RETREAT - Hemophilia Foundation of Maryland
BUDGETING, YES YOU CAN (PART 2 OF 3),EVERYTHING CREDIT (PART 3 O 3) DEBRA JACOBS - EVENT 9/28/2022,FINANCIAL WELLNESS 101 (DEBRA JACOBS) PART 1/3,GAME OF LIFE 11/12/2022,INTENTIONAL TEAM BUILDING 11/12/2022,JOINT HEALTH WEBINAR - VIRTUAL,RAP SESSION - EVENT 5/21/2022,RAP SESSION - EVENT 5/21/2022,TEEN FITNESS 12/17/2022,WINTER HOLIDAY RAP SESSION 12/10/2022 - Hemophilia Fnd of Southern California
BASICS OF SCHOOL ADVOCACY AND GOT STRESS? STRATEGIES FOR ANXIETY AND WORRY PRESENTED BY DR. JULIANA BLOOM,, PHD, BSIS RAP SESSION - ENGLISH - EVENT 3/19/2022, BSIS RAP SESSION - EVENT 3/19/2022,CARRIER GUILT & BALANCING FAMILY ISSUES,FINANCIAL WELLNESS 101, FACILITATED BY DEBRA JACOBS - EVENT 7/13/2022,MILD MATTERS, PRESENTED BY REBEKAH HECKATHORNE, RN - Louisiana Hemophilia Foundation
2 SESSIONS - MENTAL HEALTH 101 FOR TEENS & MY STORY OF RESILIENCE - EVENT 7/25/2022,2 SESSIONS: INTIMACY (COUPLES) AND RAP SESSION (INTIMACY),BLOOD SISTERHOOD PROGRAM OVERVIEW,IMPORTANCE OF COMMUNITY,IMPROV FOR TEENS CONNECTIONS & MENTAAL HEALTH, REAL TALK, - Midwest Hemophilia Association V
12/13/22, FAMILES,4 SESSIONS: KINESIO TAPING, ADAPTING PHYSICAL ACTIVITIES FOR JOINT HEALTH, AND A PATHWAY FOR BEST CARE; THE REPRODUCTIVE YEARS,KINESIO TAPING,MENTAL HEALTH 101 - EVENT 5/14/2022,ON THE HORIZON/EMERGING THERAPIES,RAP SESSION: HEALTH & WELLNESS. - Virginia Hemophilia Foundation (v)
A PATHWAY FOR BEST CARE,ADAPTING PHYSICAL ACTIVITIES FOR JOINT HEALTH - EVENT 8/13/2022,AGES AND STAGE; EARLY CHILDHOOD,MIND-BODY-HEART CONNECTION,MY STORY OR RESILIENCE & EMERGING THERAPIES,RAP SESSION,TRAUMA AND PTSD IN THE BLEEDING DISORDERS COMMUNITY.
What kind of organizations it funds
By each recipient's own IRS classification, for the 24 of 37 recipients we could match to a registered organization. These are assigned categories, not our guesses -- Schedule I reports the recipient's EIN, so this is a lookup rather than a name match.
Giving by year
| Tax year | Grants reported | Total | Median grant |
|---|---|---|---|
| 2022 | 33 | $380,000 | $12,000 |
| 2023 | 31 | $362,290 | $12,500 |
| 2024 | 3 | $25,000 | $9,000 |
Tax years, not calendar years, and the most recent year is usually incomplete -- Form 990 arrives about a year after the year it covers, so a low final year means late paperwork rather than a grantmaker winding down.
Where its money goes
10% of its giving went to organizations in California. Community foundations and federated funds are usually the most geographically bounded funders there are -- being outside the footprint is normally disqualifying in a way that a weak programme fit is not.
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Funders that support the same organizations
These grantmakers and private foundations gave to organizations this one also funded. Shared grantees are the strongest signal available that two funders have overlapping priorities -- and a funder already backing your peers is a far warmer prospect than one that merely lists your cause.
How to approach this grantmaker
- Look for a published programme first. Unlike most private foundations, organizations of this kind often do run open, deadlined grant cycles with written guidelines. Its own website is the authority on that; this page is the authority on who it has actually paid.
- Check you are its size. The median reported grant is $12,000 -- and because grants under $5,000 need not be reported, it very likely writes smaller cheques than this page can see.
- Check you are in its geography. Its giving concentrates in California.
- Read the recipient list for organizations like yours. If nothing on it resembles your work, that is a real answer and a cheap one to get.
Related guides
Where these numbers come from
Everything above is taken from Hemophilia Federation of America's own Form 990 Schedule I filings, which the IRS publishes in bulk. We used 4 returns (tax years 2021-2024). Nothing here is scraped, inferred or estimated.
On its most recent return it told the IRS it made grants to 3 section 501(c)(3) organizations and 0 other organizations. That is the filer's own count for one year; the totals above cover every year we hold.
Address of record on the latest return: 999 North Capitol Street Ne 301, Washington, DC, 20001.
EIN 72-1282316 · See the original filings on ProPublica · How we build this
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