Friedreich's Ataxia Research Alliance
Springfield, VA · EIN 52-2122720. Reported 108 grants totalling $27.1M to 51 organizations across tax years 2021-2024, on Form 990 Schedule I.
Does this grantmaker accept applications?
Its tax return does not say, and we will not guess. Private foundations file Form 990-PF, which asks outright whether they fund only organizations they select themselves -- 78% say yes, and that one answer is what lets the rest of this site tell you which foundations are worth approaching. Grantmaking charities like this one file a regular Form 990 instead, and the IRS never puts the question to them. Anyone claiming to know the answer from the filing is inventing it.
Three things in the filing do bear on it:
- What kind of organization it is. For Friedreich's Ataxia Research Alliance, the IRS classifies it under medical research rather than as a grantmaker (NTEE H99) -- it is an operating charity that also makes grants.
- How spread out its giving is. 51 distinct organizations, with 30% of the dollars going to the largest single recipient. That is genuinely spread out -- the mark of a funder making many independent decisions rather than underwriting one institution.
- How much its list changes. 72% of one year's grantees are funded again the next, across 3 year-to-year transitions. That is well above the 57% median for grantmaking charities, and above the 67% private foundations manage. This list is close to settled, so a newcomer has to displace someone rather than fill a gap.
How big are its grants?
The median reported grant is $125,000. Half of what it reported fell between $67,361 and $250,000; the smallest was $5,300 and the largest $2,319,548. If you are asking for materially more than the top of that range, you are asking the wrong organization.
Every organization it funded
This is the complete list from its filings, largest first. Recipients are grouped by the EIN the filer reported, not by name, so an organization that was typed differently in two years appears once rather than twice.
| Organization | Location | Total received | Grants | Years funded | Last |
|---|---|---|---|---|---|
| Broad Institute Inc | Cambridge, MA | $8,146,634 | 4 | 4 | 2024 |
| The Childrens Hospital of Philadelphia | Philadelphia, PA | $3,534,769 | 4 | 4 | 2024 |
| The Childrens Hospital of Philadelphia Foundation | Philadelphia, PA | $1,850,000 | 4 | 4 | 2024 |
| The Regents of the University of Minnesota | Minneapolis, MN | $1,368,773 | 4 | 4 | 2024 |
| University of Florida | Gainesville, FL | $1,310,725 | 4 | 4 | 2024 |
| University of Rochester | Rochester, NY | $1,086,496 | 4 | 4 | 2024 |
| Trustees of the University of Pennsylvania | Philadelphia, PA | $862,702 | 3 | 3 | 2023 |
| Weill Medical College of Cornell University | New York, NY | $774,855 | 4 | 4 | 2024 |
| The Board of Trustees of the Leland Stanford Junior University | Stanford, CA | $742,643 | 4 | 4 | 2024 |
| Regents of the University of California at San Diego | La Jolla, CA | $569,830 | 4 | 4 | 2024 |
| Trustees of Columbia University | New York, NY | $525,000 | 4 | 4 | 2024 |
| Vesigen Inc | Cambridge, MA | $452,747 | 2 | 2 | 2024 |
| Trustees of the Indiana University | Bloomington, IN | $409,374 | 2 | 2 | 2023 |
| The Regents of the University of California Davis | Davis, CA | $375,000 | 2 | 2 | 2024 |
| Ut Southwestern Medical Center | Dallas, TX | $365,500 | 1 | 1 | 2022 |
| University of South Florida Foundation Inc | Tampa, FL | $355,009 | 4 | 4 | 2024 |
| Stealth Biotherapeutics Inc | Needham, MA | $354,572 | 2 | 2 | 2024 |
| Mass General Brigham Incorporated | Somerville, MA | $313,988 | 1 | 1 | 2024 |
| Thomas Jefferson University Hospital | Philadelphia, PA | $300,000 | 2 | 2 | 2022 |
| University of Massachusetts | Boston, MA | $300,000 | 1 | 1 | 2024 |
| Winifred Masterson Burke Medical Research | White Plains, NY | $271,164 | 4 | 4 | 2024 |
| The National Cancer Institute(nihnic) | Bethesda, MD | $249,922 | 2 | 2 | 2024 |
| California Institute of Technology | Pasadena, CA | $235,203 | 3 | 3 | 2024 |
| University of Oklahoma Health Sciences Center | Norman, OK | $233,546 | 2 | 2 | 2024 |
| University of Pittsburgh | Pittsburgh, PA | $225,000 | 1 | 1 | 2021 |
| Albany Research Institute Inc | Albany, NY | $218,190 | 2 | 2 | 2022 |
| St Jude Childrens Research Hospital Inc | Memphis, TN | $194,748 | 3 | 3 | 2024 |
| Regents Univ of California | Los Angeles, CA | $153,645 | 4 | 4 | 2024 |
| University of Alabama - Birmingham | Birmingham, AL | $150,000 | 1 | 1 | 2021 |
| Mass General Brigham Incorporated | Somerville, MA | $143,750 | 2 | 2 | 2022 |
| Rgenta Therapeutics Inc | Woburnma, MA | $125,000 | 1 | 1 | 2024 |
| Epicrispr Biotechnologies Inc | South San Francisco, CA | $100,000 | 1 | 1 | 2024 |
| Whitehead Institute for Biomedical Research | Cambridge, MA | $100,000 | 1 | 1 | 2022 |
| Yale University | New Haven, CT | $100,000 | 1 | 1 | 2022 |
| Johns Hopkins University | Baltimore, MD | $86,175 | 1 | 1 | 2024 |
| The Highest Road Film LLC | Grapevine, TX | $80,000 | 1 | 1 | 2024 |
| Boston College Trustees | Chestnut Hill, MA | $76,000 | 2 | 2 | 2024 |
| The University of Texas Southwestern Medical Center | Dallas, TX | $74,768 | 1 | 1 | 2024 |
| University of Oklahoma Health Sciences Center | Oklahoma City, OK | $57,000 | 1 | 1 | 2021 |
| Nyu School of Medicine | New York, NY | $25,000 | 1 | 1 | 2021 |
| National Ataxia Foundation Inc | Minneapolis, MN | $24,750 | 1 | 1 | 2021 |
| Cyagen Biomodels LLC | Santa Clara, CA | $24,539 | 1 | 1 | 2022 |
| Cyagen Biomodels LLC | Santa Clara, CA | $20,455 | 1 | 1 | 2021 |
| Uplifting Athletes Inc | Doylestown, PA | $20,000 | 2 | 2 | 2024 |
| The Curators of the University of Missouri | Columbia, MO | $19,150 | 1 | 1 | 2023 |
| The Ohio State University | Columbus, OH | $10,600 | 2 | 2 | 2022 |
| University of South Florida Board of Trustees | Tampa, FL | $10,000 | 1 | 1 | 2023 |
| Nationwide Childrens Hospital Inc | Columbus, OH | $9,012 | 1 | 1 | 2024 |
| University of Iowa Dept of Pediatrics | Iowa City, IA | $8,400 | 1 | 1 | 2023 |
| Emory University | Atlanta, GA | $5,991 | 1 | 1 | 2024 |
| Regents of the University of Colorado | Denver, CO | $5,483 | 1 | 1 | 2024 |
28 of 51 (55%) received money in more than one year over the 4 years we hold. Remember the $5,000 floor: an organization funded every year at $3,000 shows up here as never funded at all.
What kind of organizations it funds
By each recipient's own IRS classification, for the 26 of 51 recipients we could match to a registered organization. These are assigned categories, not our guesses -- Schedule I reports the recipient's EIN, so this is a lookup rather than a name match.
Giving by year
| Tax year | Grants reported | Total | Median grant |
|---|---|---|---|
| 2021 | 25 | $5,499,337 | $142,643 |
| 2022 | 27 | $7,458,986 | $125,000 |
| 2023 | 24 | $6,991,973 | $120,866 |
| 2024 | 32 | $7,105,812 | $120,867 |
Tax years, not calendar years, and the most recent year is usually incomplete -- Form 990 arrives about a year after the year it covers, so a low final year means late paperwork rather than a grantmaker winding down.
Where its money goes
37% of its giving went to organizations in Massachusetts. Community foundations and federated funds are usually the most geographically bounded funders there are -- being outside the footprint is normally disqualifying in a way that a weak programme fit is not.
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Funders that support the same organizations
These grantmakers and private foundations gave to organizations this one also funded. Shared grantees are the strongest signal available that two funders have overlapping priorities -- and a funder already backing your peers is a far warmer prospect than one that merely lists your cause.
How to approach this grantmaker
- Look for a published programme first. Unlike most private foundations, organizations of this kind often do run open, deadlined grant cycles with written guidelines. Its own website is the authority on that; this page is the authority on who it has actually paid.
- Check you are its size. The median reported grant is $125,000 -- and because grants under $5,000 need not be reported, it very likely writes smaller cheques than this page can see.
- Check you are in its geography. Its giving concentrates in Massachusetts.
- Read the recipient list for organizations like yours. If nothing on it resembles your work, that is a real answer and a cheap one to get.
Related guides
Where these numbers come from
Everything above is taken from Friedreich's Ataxia Research Alliance's own Form 990 Schedule I filings, which the IRS publishes in bulk. We used 4 returns (tax years 2021-2024). Nothing here is scraped, inferred or estimated.
On its most recent return it told the IRS it made grants to 27 section 501(c)(3) organizations and 5 other organizations. That is the filer's own count for one year; the totals above cover every year we hold.
Address of record on the latest return: Po Box 1537, Springfield, VA, 22151.
EIN 52-2122720 · See the original filings on ProPublica · How we build this
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