Child Neurology Education and Research Foundation
Lexington, KY · EIN 41-1984675. Reported 40 grants totalling $1,343,375 to 31 organizations across tax years 2021-2024, on Form 990 Schedule I.
Does this grantmaker accept applications?
Its tax return does not say, and we will not guess. Private foundations file Form 990-PF, which asks outright whether they fund only organizations they select themselves -- 78% say yes, and that one answer is what lets the rest of this site tell you which foundations are worth approaching. Grantmaking charities like this one file a regular Form 990 instead, and the IRS never puts the question to them. Anyone claiming to know the answer from the filing is inventing it.
Three things in the filing do bear on it:
- What kind of organization it is. For Child Neurology Education and Research Foundation, the IRS classifies it under medical research rather than as a grantmaker (NTEE H50) -- it is an operating charity that also makes grants.
- How spread out its giving is. 31 distinct organizations, with 13% of the dollars going to the largest single recipient. That is genuinely spread out -- the mark of a funder making many independent decisions rather than underwriting one institution.
- How much its list changes. 14% of one year's grantees are funded again the next, across 3 year-to-year transitions. That is below the 57% median for grantmaking charities, and well below the 67% private foundations manage. A list that turns over this much is one a newcomer can realistically join.
How big are its grants?
The median reported grant is $13,000. Half of what it reported fell between $12,500 and $30,000; the smallest was $6,000 and the largest $175,000. If you are asking for materially more than the top of that range, you are asking the wrong organization.
Every organization it funded
This is the complete list from its filings, largest first. Recipients are grouped by the EIN the filer reported, not by name, so an organization that was typed differently in two years appears once rather than twice.
| Organization | Location | Total received | Grants | Years funded | Last |
|---|---|---|---|---|---|
| Ann & Robert H Lurie Childrens Hospital of Chicago | Chicago, IL | $175,000 | 1 | 1 | 2022 |
| Rector & Visitors of the University of Virginia | Charlottesvle, VA | $150,000 | 1 | 1 | 2023 |
| University of Rochester | Rochester, NY | $150,000 | 1 | 1 | 2022 |
| University of Utah | Salt Lake City, UT | $150,000 | 1 | 1 | 2023 |
| Childrens Research Institute | Washington, DC | $113,000 | 2 | 2 | 2024 |
| Regents of the University of California at Irvine | Irvine, CA | $106,000 | 2 | 2 | 2023 |
| National Tuberous Sclerosis Association Inc | Silver Spring, MD | $73,375 | 2 | 2 | 2022 |
| Child Neurology Society | Roseville, MN | $61,000 | 2 | 2 | 2022 |
| Childrens Hospital Corporation | Boston, MA | $38,000 | 2 | 2 | 2024 |
| American Epilepsy Society | Chicago, IL | $35,000 | 3 | 3 | 2023 |
| University of Louisville Research Foundation Inc | Louisville, KY | $25,000 | 1 | 1 | 2024 |
| University of Pittsburgh | Pittsburgh, PA | $25,000 | 2 | 2 | 2024 |
| University of Louisville Research Foundation | Louiseville, KY | $25,000 | 1 | 1 | 2023 |
| Dup 15Q Alliance | Matthews, NC | $19,000 | 2 | 2 | 2022 |
| Lgs Foundation | San Diego, CA | $19,000 | 1 | 1 | 2021 |
| Washington University | St Louis, MO | $19,000 | 1 | 1 | 2024 |
| Angelman Syndrome Foundation Inc | Aurora, IL | $13,000 | 1 | 1 | 2024 |
| Baylor College of Medicine | Houston, TX | $13,000 | 1 | 1 | 2024 |
| Boston Medical Center Corporation | Boston, MA | $13,000 | 1 | 1 | 2024 |
| Childrens Mercy Hospital | Kansas City, MO | $13,000 | 1 | 1 | 2024 |
| Childserve Foundation Inc | Johnston, IA | $13,000 | 1 | 1 | 2024 |
| Hugo W Moser Research Institute at Kennedy Krieger Inc | Baltimore, MD | $13,000 | 1 | 1 | 2024 |
| Mass General Brigham Incorporated | Somerville, MA | $13,000 | 1 | 1 | 2024 |
| Regents of the University of Colorado | Denver, CO | $13,000 | 1 | 1 | 2024 |
| Saint Marys Hospital for Children Inc | Bayside, NY | $13,000 | 1 | 1 | 2024 |
| Trustees of Columbia University | New York, NY | $13,000 | 1 | 1 | 2024 |
| Case Western Reserve University | Cleveland, OH | $6,000 | 1 | 1 | 2024 |
| Rush University Medical Center | Chicago, IL | $6,000 | 1 | 1 | 2023 |
| The University of Central Florida Board of Trustees | Orlando, FL | $6,000 | 1 | 1 | 2024 |
| Virginia Commonwealth University | Richmond, VA | $6,000 | 1 | 1 | 2024 |
| Weill Medical College of Cornell University | New York, NY | $6,000 | 1 | 1 | 2023 |
8 of 31 (26%) received money in more than one year over the 4 years we hold. Remember the $5,000 floor: an organization funded every year at $3,000 shows up here as never funded at all.
What the money was for
Taken verbatim from the purpose column of its filings, largest first. This is the closest thing to a statement of what it funds, in its own words.
- Ann and Robert H Lurie Children's Hospital of Chicago
2023 PERF Grant - $150,000; 2023 Transition of Care Quality Improvement Grant - $25,000 - Rector and Visitors of the University of Virginia
2023 PERF Grant - $150,000 - Regents of the University of California Awardee Autumn Ivy MD Phd
2021 PERF Elterman Research Grant - Children's Research Institute Awardee Nathan Cohen MD
2022 PERF Shields Research Grant - National Tuberous Sclerosis Association Dba Tsc Alliance
2022 Infantile Spasms Awareness Network Governance Grant - $36,375; 2022 Infantile Spasms Awareness Week Grant - $5,000 - Tuberous Sclerosis Alliance
Infantile Spasms Awareness Week
What kind of organizations it funds
By each recipient's own IRS classification, for the 24 of 31 recipients we could match to a registered organization. These are assigned categories, not our guesses -- Schedule I reports the recipient's EIN, so this is a lookup rather than a name match.
Giving by year
| Tax year | Grants reported | Total | Median grant |
|---|---|---|---|
| 2021 | 7 | $298,000 | $30,000 |
| 2022 | 7 | $446,875 | $31,000 |
| 2023 | 8 | $368,000 | $12,500 |
| 2024 | 18 | $230,500 | $13,000 |
Tax years, not calendar years, and the most recent year is usually incomplete -- Form 990 arrives about a year after the year it covers, so a low final year means late paperwork rather than a grantmaker winding down.
Where its money goes
17% of its giving went to organizations in Illinois. Community foundations and federated funds are usually the most geographically bounded funders there are -- being outside the footprint is normally disqualifying in a way that a weak programme fit is not.
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Funders that support the same organizations
These grantmakers and private foundations gave to organizations this one also funded. Shared grantees are the strongest signal available that two funders have overlapping priorities -- and a funder already backing your peers is a far warmer prospect than one that merely lists your cause.
How to approach this grantmaker
- Look for a published programme first. Unlike most private foundations, organizations of this kind often do run open, deadlined grant cycles with written guidelines. Its own website is the authority on that; this page is the authority on who it has actually paid.
- Check you are its size. The median reported grant is $13,000 -- and because grants under $5,000 need not be reported, it very likely writes smaller cheques than this page can see.
- Check you are in its geography. Its giving concentrates in Illinois.
- Read the recipient list for organizations like yours. If nothing on it resembles your work, that is a real answer and a cheap one to get.
Related guides
Where these numbers come from
Everything above is taken from Child Neurology Education and Research Foundation's own Form 990 Schedule I filings, which the IRS publishes in bulk. We used 4 returns (tax years 2021-2024). Nothing here is scraped, inferred or estimated.
On its most recent return it told the IRS it made grants to 20 section 501(c)(3) organizations and 20 other organizations. That is the filer's own count for one year; the totals above cover every year we hold.
Address of record on the latest return: Po Box 1226, Lexington, KY, 40588.
EIN 41-1984675 · See the original filings on ProPublica · How we build this
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