American Epilepsy Society
Chicago, IL · EIN 04-6112600. Reported 138 grants totalling $5,517,800 to 82 organizations across tax years 2020-2023, on Form 990 Schedule I.
Does this grantmaker accept applications?
Its tax return does not say, and we will not guess. Private foundations file Form 990-PF, which asks outright whether they fund only organizations they select themselves -- 78% say yes, and that one answer is what lets the rest of this site tell you which foundations are worth approaching. Grantmaking charities like this one file a regular Form 990 instead, and the IRS never puts the question to them. Anyone claiming to know the answer from the filing is inventing it.
Three things in the filing do bear on it:
- What kind of organization it is. For American Epilepsy Society, the IRS classifies it under diseases & disorders rather than as a grantmaker (NTEE G540) -- it is an operating charity that also makes grants.
- How spread out its giving is. 82 distinct organizations, with 5% of the dollars going to the largest single recipient. That is genuinely spread out -- the mark of a funder making many independent decisions rather than underwriting one institution.
- How much its list changes. 49% of one year's grantees are funded again the next, across 3 year-to-year transitions. That is about the 57% median for grantmaking charities -- noticeably lower than the 67% private foundations manage. Organizations like this one rotate more of their list each year, which is where an opening for a newcomer tends to be.
How big are its grants?
The median reported grant is $39,250. Half of what it reported fell between $20,000 and $50,000; the smallest was $6,500 and the largest $130,000. If you are asking for materially more than the top of that range, you are asking the wrong organization.
Every organization it funded
This is the complete list from its filings, largest first. Recipients are grouped by the EIN the filer reported, not by name, so an organization that was typed differently in two years appears once rather than twice.
| Organization | Location | Total received | Grants | Years funded | Last |
|---|---|---|---|---|---|
| Baylor College of Medicine | Houston, TX | $255,735 | 4 | 4 | 2023 |
| American Brain Foundation | Minneapolis, MN | $174,917 | 4 | 4 | 2023 |
| Icahn School of Medicine at Mount Sinai | New York, NY | $172,705 | 4 | 4 | 2023 |
| University of Utah | Salt Lake City, UT | $165,000 | 3 | 3 | 2023 |
| Cleveland Clinic Foundation | Independence, OH | $153,189 | 2 | 2 | 2022 |
| Childrens Research Institute | Washington, DC | $152,470 | 2 | 2 | 2022 |
| The Pennsylvania State University | University Park, PA | $150,000 | 2 | 2 | 2023 |
| University of North Carolina at Chapel Hill | Chapel Hill, NC | $150,000 | 2 | 2 | 2023 |
| Regents Univ of California | Los Angeles, CA | $144,000 | 3 | 3 | 2022 |
| Regents of the University of Colorado | Denver, CO | $120,000 | 3 | 3 | 2022 |
| University of Washington Foundation | Seattle, WA | $118,770 | 3 | 3 | 2023 |
| New York University | New York, NY | $115,000 | 2 | 2 | 2021 |
| Trustees of the University of Pennsylvania | Philadelphia, PA | $113,240 | 2 | 2 | 2022 |
| Trustees of Tufts College | Medford, MA | $111,500 | 4 | 4 | 2023 |
| Trustees of Columbia University | New York, NY | $110,000 | 3 | 3 | 2023 |
| Cornell University | Ithaca, NY | $109,964 | 4 | 3 | 2023 |
| Childrens Hospital Medical Center | Cincinnati, OH | $105,000 | 3 | 3 | 2023 |
| Gordon Research Conferences | E Greenwich, RI | $105,000 | 3 | 3 | 2023 |
| Associated Students of Stanford University | Stanford, CA | $103,000 | 3 | 3 | 2023 |
| The Childrens Hospital of Philadelphia | Philadelphia, PA | $101,000 | 3 | 2 | 2023 |
| Brigham & Women's Physician Hospital Organization Inc | Boston, MA | $100,000 | 2 | 2 | 2021 |
| Duke University Health System Inc | Durham, NC | $100,000 | 2 | 2 | 2023 |
| Regents of the University of Michigan | Ann Arbor, MI | $100,000 | 1 | 1 | 2023 |
| University of Vermont Medical Center Inc | Burlington, VT | $100,000 | 1 | 1 | 2021 |
| Yale University | New Haven, CT | $100,000 | 2 | 2 | 2023 |
| M Club of the University of Michigan | Ann Arbor, MI | $93,500 | 3 | 3 | 2023 |
| Northwestern University | Evanston, IL | $80,000 | 2 | 2 | 2023 |
| University of Central Florida | Orlando, FL | $75,000 | 1 | 1 | 2023 |
| Board of Regents of the University of Wisconsin System | Madison, WI | $72,500 | 2 | 2 | 2023 |
| Rutgers University Foundation | New Brunswick, NJ | $72,000 | 1 | 1 | 2021 |
| Albert Einstein College of Medicine | Bronx, NY | $70,000 | 1 | 1 | 2020 |
| Seattle Childrens Hospital | Seattle, WA | $70,000 | 2 | 2 | 2022 |
| University of Maryland Baltimore | Baltimore, MD | $64,955 | 1 | 1 | 2022 |
| Washington University | St Louis, MO | $62,000 | 3 | 3 | 2023 |
| University of California- Davis | Davis, CA | $61,500 | 2 | 2 | 2022 |
| University of Southern California | Los Angeles, CA | $60,000 | 1 | 1 | 2020 |
| Childrens Hospital Corporation | Boston, MA | $59,125 | 2 | 2 | 2023 |
| University of Wisconsin Foundation | Madison, WI | $57,500 | 2 | 2 | 2022 |
| University of Alabama - Birmingham | Birmingham, AL | $52,500 | 1 | 1 | 2023 |
| Regents of the University of California at Berkeley | Riverside, CA | $52,455 | 2 | 1 | 2022 |
| Rector & Visitors of the University of Virginia | Charlottesvle, VA | $51,000 | 1 | 1 | 2023 |
| Albert Einstein College of Medicine | Bronx, NY | $50,000 | 1 | 1 | 2023 |
| Brigham Young University | Provo, UT | $50,000 | 1 | 1 | 2023 |
| Emory University | Atlanta, GA | $50,000 | 2 | 2 | 2022 |
| State University of Iowa Foundation | Iowa City, IA | $50,000 | 1 | 1 | 2021 |
| The Medical College of Wisconsin Inc | Milwaukee, WI | $50,000 | 1 | 1 | 2022 |
| The State University of Iowa | Iowa City, IA | $50,000 | 1 | 1 | 2023 |
| Trustees of Columbia University in the City of New York | New York, NY | $50,000 | 1 | 1 | 2020 |
| University of Texas at Austin | Austin, TX | $50,000 | 1 | 1 | 2020 |
| University of Virginia Foundation | Charlottesvle, VA | $50,000 | 1 | 1 | 2020 |
| Wake Forest University Health Sciences | Winston Salem, NC | $50,000 | 1 | 1 | 2020 |
| Trustees of Purdue University | West Lafayette, IN | $49,165 | 1 | 1 | 2023 |
| Regents of the University of California | Oakland, CA | $49,000 | 2 | 2 | 2023 |
| St Jude Childrens Research Hospital Inc | Memphis, TN | $41,500 | 1 | 1 | 2022 |
| Board of Regents of the University of Nebraska | Lincoln, NE | $40,000 | 1 | 1 | 2020 |
| Northwestern University | Evanston, IL | $40,000 | 1 | 1 | 2020 |
| Carnegie Mellon University | Pittsburgh, PA | $32,625 | 1 | 1 | 2021 |
| University of Kansas Medical Center Research Institute | Kansas City, KS | $31,480 | 2 | 2 | 2023 |
| Creighton University | Omaha, NE | $30,000 | 1 | 1 | 2021 |
| Mayo Clinic | Rochester, MN | $30,000 | 1 | 1 | 2022 |
| Southern Methodist University | Dallas, TX | $30,000 | 1 | 1 | 2022 |
| St Johns University New York | Jamaica, NY | $30,000 | 1 | 1 | 2023 |
| Trustees of Boston University | Boston, MA | $30,000 | 1 | 1 | 2023 |
| University of California San Francisco | San Francisco, CA | $30,000 | 1 | 1 | 2020 |
| University of Pittsburgh | Pittsburgh, PA | $22,000 | 1 | 1 | 2022 |
| J David Gladstone Institutes | San Francisco, CA | $20,000 | 1 | 1 | 2022 |
| Nyu Grossman School of Medicine | New York, NY | $20,000 | 1 | 1 | 2023 |
| Research Foundation of the City University of New York | New York, NY | $20,000 | 1 | 1 | 2020 |
| Texas A&m Foundation | College Sta, TX | $20,000 | 1 | 1 | 2021 |
| University of Illinois Foundation | Champaign, IL | $20,000 | 1 | 1 | 2021 |
| The University of Texas at San Antonio | San Antonio, TX | $19,000 | 1 | 1 | 2023 |
| Pediatric Epilepsy Research Consortium Inc | Chicago, IL | $15,000 | 1 | 1 | 2023 |
| Research Foundation for Mental Hygiene Inc | Menands, NY | $15,000 | 1 | 1 | 2023 |
| University of Minnesota Foundation | Minneapolis, MN | $15,000 | 1 | 1 | 2021 |
| University of Alabama Health Services Foundation Pc | Birmingham, AL | $14,400 | 1 | 1 | 2021 |
| Mass General Brigham Incorporated | Somerville, MA | $13,500 | 1 | 1 | 2023 |
| Mass General Brigham Incorporated | Somerville, MA | $12,500 | 1 | 1 | 2022 |
| Candid | New York, NY | $11,500 | 1 | 1 | 2023 |
| Vanderbilt University Medical Center | Nashville, TN | $10,105 | 1 | 1 | 2022 |
| Alliance for Epilepsy Research | Dexter, MI | $7,500 | 1 | 1 | 2021 |
| Citizens United for Research in Epilepsy | Chicago, IL | $7,500 | 1 | 1 | 2022 |
| The FAMILIESCN2A Foundation Inc | E Longmeadow, MA | $6,500 | 1 | 1 | 2021 |
34 of 82 (41%) received money in more than one year over the 4 years we hold. Remember the $5,000 floor: an organization funded every year at $3,000 shows up here as never funded at all.
What the money was for
Taken verbatim from the purpose column of its filings, largest first. This is the closest thing to a statement of what it funds, in its own words.
- University of Utah
POSTDOCTORAL RESEARCH GRANT - New York University School of Medicine
JUNIOR INVESTIGATOR RESEARCH GRANT - University of Maryland Baltimore
JUNIOR INVESTIGATOR GRANT - The Regents of the University of Mi
PARTNERSHIP PROGRAM (ESC) GRANT - University of Pittsburgh
PARTNER PROGRAMS (ESC) GRANT - FAMILIESCN2A Foundation Inc
WORKSHOP GRANTWORKSHOP GRANT
What kind of organizations it funds
By each recipient's own IRS classification, for the 57 of 82 recipients we could match to a registered organization. These are assigned categories, not our guesses -- Schedule I reports the recipient's EIN, so this is a lookup rather than a name match.
Giving by year
| Tax year | Grants reported | Total | Median grant |
|---|---|---|---|
| 2020 | 25 | $1,215,000 | $50,000 |
| 2021 | 32 | $1,280,489 | $38,812 |
| 2022 | 41 | $1,502,624 | $30,000 |
| 2023 | 40 | $1,519,687 | $34,250 |
Tax years, not calendar years, and the most recent year is usually incomplete -- Form 990 arrives about a year after the year it covers, so a low final year means late paperwork rather than a grantmaker winding down.
Where its money goes
14% of its giving went to organizations in New York. Community foundations and federated funds are usually the most geographically bounded funders there are -- being outside the footprint is normally disqualifying in a way that a weak programme fit is not.
Down to the city
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Funders that support the same organizations
These grantmakers and private foundations gave to organizations this one also funded. Shared grantees are the strongest signal available that two funders have overlapping priorities -- and a funder already backing your peers is a far warmer prospect than one that merely lists your cause.
How to approach this grantmaker
- Look for a published programme first. Unlike most private foundations, organizations of this kind often do run open, deadlined grant cycles with written guidelines. Its own website is the authority on that; this page is the authority on who it has actually paid.
- Check you are its size. The median reported grant is $39,250 -- and because grants under $5,000 need not be reported, it very likely writes smaller cheques than this page can see.
- Check you are in its geography. Its giving concentrates in New York.
- Read the recipient list for organizations like yours. If nothing on it resembles your work, that is a real answer and a cheap one to get.
Related guides
Where these numbers come from
Everything above is taken from American Epilepsy Society's own Form 990 Schedule I filings, which the IRS publishes in bulk. We used 4 returns (tax years 2020-2023). Nothing here is scraped, inferred or estimated.
On its most recent return it told the IRS it made grants to 40 section 501(c)(3) organizations and 0 other organizations. That is the filer's own count for one year; the totals above cover every year we hold.
Address of record on the latest return: 135 S Lasalle St 2850, Chicago, IL, 60603.
EIN 04-6112600 · See the original filings on ProPublica · How we build this
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